One local couple recently found out that two of their three children have a fatal disease. Now members of their community are trying to make the family's life as comfortable and safe as possible.
Alex Boyd is like a twelve-month old in an eight-year old body. A rare genetic disorder causes toxins to build up , damaging his organs including his brain. He can only say a few words, and he's losing the ability to walk.
His mother, Samantha says," he's into everything. He can be aggressive. You know, a child may smack you and you may not notice it , but an 8 year old hitting you is a lot harder."
The effects of Sanfilippo Syndrome aren't as visible in Isabelle who's 19-months old. She's developmentally delayed and she's not walking.
Samantha says her children are only exected to live 14 to 20 years. There's no cure ---not even any treatments for Sanfilippo Syndrome.
"Really, it's quality of life, making sure my kids are happy and safe and just waiting," she says.
October 18-20 folks in Mill Creek, Huntingdon County will try to help the Boyds, as least keep their children safe. Residents are holding a three day Community Cares fundraiser at Lion's Park in Mill Creek.
It runs from 8am to 8pm Friday and Saturday, and from noon to 5 pm on Sunday.
The events feature crafts, a flea marekt, a motorcycle poker run, pie eating contests, a petting zoo, and more.
Money raised this weekend will help the Boyds make home renovations to help them better cope with the children's disabilities. The family's bathroom is upstairs and since Alex is losing his ability to walk, that's becoming an issue for them.